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Living with and after cancer
Separate information pages on Late Effects
of pelvic radiotherapy in women and men

Cancer Survivorshippdf published by Nursing
Times (March 2009), available through Macmillan
Macmillan information centres in the UK which
you can find by entering your UK postcode
Many excellent booklets are available,
mostly free, on searching their website.
NACC
NACC article on problems after pelvic radiotherapypdf
article published in 2006 includes input from UK
medics, medical charities and patients, aims to
improve awareness of problems after radiotherapy
 Crohn's and Colitis has some similarities with
people who have bowel problems after
radiotherapy, so their website contains lots
of tips, including information on Radar Keys
Opens in a new window
Contains lots of information about aspects of
cancer survivorship, consequences of treatment,
work, finances, rehabilitation, self-management,
children and young people, and more.

The National Cancer Survivorship Initiative (NCSI),
created by the Cancer Reform Strategy (2007),
published its vision statement in 2010
CancerHelp UK information

There is a wealth of information to navigate to
on the Cancer Research UK site using the
menus from any link.


Prostate Action is an excellent website on all aspects of Prostate Diseases.

Pelvic Radiation Disease Association (PRDA) is a new support group formed from an initial meeting of patients of the Royal Marsden in London in 2008.
A newer, similar group started in 2010 at the Christie Hospital in Manchester.

Consequential late effects after radiotherapy for prostate cancer - a prospective longitudinal quality of life study. Pinkawa M, Holy R, Piroth MD, Fischedick K, Schaar S, Székely-Orbán D, et al. Radiation Oncology (London, England) April 2010, (full article). For men who have had radiotherapy for prostate cancer, article entitled:

RAGE (Radiotherapy Action Group Exposure) lobbied UK media, Parliament and medical authorities in 1990's. Their actions concerned mainly damage after breast cancer.

 Gastrointestinal complications - Radiation Enteritis :  Includes diet advice from US National Cancer Institute.

How patients manage gastrointestinal symptoms after pelvic radiotherapypdf - 30 July 2003;
B Gami, K Harrington, P Blake, D Dearnaley, D Tait, J Davies, AR Norman, HJN Andreyev. (Full Article)

Predicting Late Effects of Pelvic Radiotherapy: Is There a Better Approachpdf - Pub.online in Radiation Oncology March 2010:
Multi-disciplinary study by Royal Marsden NHS Trust (Abstract, but full version available (see link)
Current management for late normal tissue injury: radiation-induced fibrosis and necrosis. April 2007
Delanian. S, Lefaix JL (Abstract - full article available from publishers)

Significant clinical improvements in radiation-induced lumbosacral polyradiculopathy by a treatment combining pentoxifylline, tocopherol and clodronate. Dec 2008, Delanian S, Lefaix JL, Salachas F, Pradat PF. (Abstract - full article available from publishers)
Delayed Radiation Injuries (soft tissue and bony necrosis). An article in some technical detail, but explains that some delayed effects might become indistinguishable between those, and acute effects that are never resolved. It talks of prophylactic interventional HBO.

An article on Radiation Enteritis for medical professionals, but might be useful. Links to other sources of information too.

Practice guidance on the management of acute and chronic gastrointestinal problems arising as a result of treatment for cancer.
H Jervoise N Andreyev, Susan E Davidson, Catherine Gillespie, William H Allum, Edwin Swarbrick.  Pub. Gut Online Nov 2011.
See News page for link to launch symposium for this article

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